Fides Uiso is a single mother to a child with a severe form of epilepsy known as Dravet Syndrome; who have suffered stigmatization because she is raising a child with epilepsy. Determined to live above this stigmatization. Fides became vocal about her child’s condition and is today inspiring hope in families with epileptic children. In this interview with Project Inspire Africa, Fides shares her story, struggle and successes. Can we meet you? My name is Fides Uiso a 33-year-old mother and founder of Tanzania Epilepsy Organization a non- governmental Organization based in Tanzania. I am a human right champion for people living with Epilepsy and passionate about seeing them enjoy equal rights. Tell us briefly your childhood experience. I am the last of a family of six. When I was a child I believed Epilepsy was contagious and hereditary because that’s the narrative that was pushed in my community. It wasn’t strange to anyone to see people living with epilepsy been discriminate...
Telling one story at a time; amplifying the voices of young people.